Akcos Forum - Question: do you have a support group in AU?

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Dec 17, 2009, 7:15am

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Topic: Question: do you have a support group in AU? (Read 19 times)

dmaskens
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Question: do you have a support group in AU?
« Thread Started on Jul 7, 2009, 6:57am »

Hello from Canada,
I'm writing to see if someone could point me to a contact or a website for an Australian Kidney Cancer Support Group.

Here in Canada we formed a patient support and advocacy group and have had some success getting the key drugs for rcc funded. I would be very interested to speak with anyone who is doing something similar in Australia or New Zealand.

Please email me offline if possible:
debmaskens@kidneycancercanada.ca
www.kidneycancercanada.ca

Thank you.
Deb, fellow patient with papillary rcc
live near Toronto, Canada
diagnosed 1974 at age 14; currently 48 and dealing with metastasis. Taking XL-880 on Clinical Trial in the U.s.

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Chrissy
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Re: Question: do you have a support group in AU?
« Reply #1 on Jul 25, 2009, 3:37pm »

Hi Deb,

So sorry it has taken so long to get back to you. We did have an AKCOS website, but sadly, it has gone the way of most good websites. Maybe when I am feeling a bit more "with it" I will get another started.

Hugs

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Love and Hugs,

Chrissy

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